good morning! i am extremely tired this morning. have been all week. just need an entire day to sleep and catch up, but there's never time! i'm so desperately yearning for a snow day!
things are overwhelming this week. i feel like life is just flying by. and i can't do anything but try to hang on! you know that feeling? like your schedule is just whipping you around and you are just hanging on the back?
many of you know, but i haven't posted a formal blog yet on the possible crps diagnosis. (complex regional pain syndrome). the rheumatologist mentioned it for the first time on wednesday during our appointment (it's also known as reflex sympathetic dystrophy). check it out... do some research on it. it's interesting. and i match almost every single symptom. i have to keep an eye on a few things, and then call him back if anything changes. lets just say, i have to call him back. my hip is tingly all the time, it's colder than my left hip, it's a red-blotchy color, and it's waking me up about 7 times a night. so we'll see what he thinks. i'll post more later...
love to you all!
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5 years ago
1 comment:
Hi, I too have RSD/CRPS. I have had it now since 12/06.
The best sites I have found are:
http://www.RSDS.org
http://www.RSDHope.org (great letter to family and friends as to this horrible condition)
I know it hurts, but you should ask for water therapy (to try to keep strong), psychologist/psychiatrist (to help you learn to accept, plus this condition will take you down many different emotions, just like a roller coaster and it's good to have them to talk to), pain management doctor, even a physical therapist.
It hurts, but if you don't move it, you'll lose it. I was bedridden in 9 months. I now have a spinal cord stimulator implanted in my spine to help the RSD in my right leg.
I have a forum (non active, just for sites) that list support groups for people with RSD). Go to:
http://AfflictedWithRSD.com and click on additional support, under forum and get the links to various sites.
Hugs. Stay strong.
Christine
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